When I started Stay Frosty one of the very first pilots to show an interest was a very young pilot named Joffy Aulx-Gao. He had only been playing Eve for a few short months when he joined Stay Frosty, but his enthusiasm was apparent from the first. There are people you meet in this game that you just know are going to be special if they stick with it. I knew Joffy was special, even before I knew just how special he was.
Years ago, out here in real life, I was fortunate to meet a very special man who worked for the Pittsburgh Pirates. I won't mention his name, he has since passed away, but he was their top ticket seller. He also had Duchenne's Muscular Dystrophy. Together with some great help from the MDA, we created an event called the Muscle Team here in Pittsburgh that brought famous athletes together with children that suffered from the various incarnations of that affliction for a night. Over the six years that I served as a National Vice President of the MDA we raised well over 3 million dollars for research and other support for the MDA. That man became a good friend of mine and I learned a tremendous amount from him, and all of those I was lucky enough to know thru that experience.
|This is me with James Harrison at the MDA Event|
More importantly, he became my good friend.
At some point during that first Summer Joffy confided in me. He isn't a normal Eve player you see. Joffy has a form of Muscular Dystrophy called Pompe disease. For the most part Joffy is confined to his bed, primarily because of problems with his back. His motion is rather limited, primarily to his hands, fingers and face. He has had to innovate a bit to make Eve work for him. He's had to manage the UI in order to minimize the amount of mouse travel he needs to perform and it is virtually impossible for him to use key-commands while playing and working the mouse.
|Joffy's squished UI|
I'm going to let him tell it in his own words:
"I can only move my hands, fingers and face so it was challenging to play EVE in the beginning but I learned to do it better using only a mouse. First thing I did to become faster in PVP was to set up my UI so I had less mouse travel and it actually worked fine, next thing was to get a better mouse that I could adjust to my needs so I bought a Razor Ouroboros because it can be adjusted in size and mouse speed.
And of course lots of practice, theoretical knowledge isn’t enough when it comes to PVP, you need to learn it the hard way by dying and getting used to it.
When I don’t play PC i’m a professional handicap bowler, this year goes good so far with an average on 165. Last year me and my friend came in 3rd but that’s not good enough. XD
I never let my disease get me down, I fight back!"
One of the hardest things for me has been knowing this about Joffy all this time and having to keep my mouth shut about it. Especially when commenters on his videos make fun of him for not using key commands, or someone from the Tuskers does the same in local, or the numerous times it has happened right here on this blog. But I promised him I wouldn't say anything and I didn't. It was his right if he wanted people to know, or if he didn't.
Recently Joffy has moved over to our WH Corporation and started living out of the Wormhole. He hasn't said it, but I suspect it has become harder for him lately. When he disappears from the game, or from comms, or from chat for any length of time - I worry. I can't help it. But I also know he is incredibly brave and wants to do this for anyone else out there that is in a similar situation. Anyone that faces their own challenges. As I said at the very top, Eve is a great way to socialize, meet, and explore the world - even when you are limited in some way in real life. Anything is possible.
|Joffy wanted me to know that isn't his dog|
Beyond the screen are real people living very real lives. I strongly believe it is important to never forget that. At the end of this past week of talking about how we treat each other in-game, about where lines might be and where they might not be, about building places in-game and out, and of hearing news of friends that are no longer with us - I think this is the most important lesson of all. We are all real people.
Joffy is a fighter. A Pirate. A PvPer. A great player in space and in the Alliance. He has come a long way since those first few months and I've been proud to fly along-side him since day one.
Keep the courage my friend.